
Heart Works
Our Mission

Charlie’s story has inspired his family to create Heart Works.
Our mission is to improve the lives of children born with heart defectsand kids with heart conditions by raising money to donate books and toys to the child life departments of Golisano Children’s Hospital and Boston Children’s Hospital.
With so many scary things going on around them, distractions are vital. Heart Works donates books and toys to Golisano and Boston to give patients something to do. Please donate to support this initiative and help kids get through their long journeys.
Charlie’s Story
In May of 2008, Charlie was born at 35 weeks and weighed almost 6 lbs. He appeared to be a normal infant until he began to display unusual symptoms at 3 months old. He suddenly was losing weight, constantly vomiting, sweating, & breathing rapidly.
When taken to the hospital, it was detected that Charlie’s heart took up the majority of space in his chest and that the left and right sides of the heart were disproportionate. He was diagnosed with a congenital heart defect known as Hypoplastic Left Heart Syndrome. Essentially, the left side of Charlie’s heart was much smaller & weaker than the right. This forced the right side (which pumps to the lungs) to overwork, thus enlarging & stretching it out.



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